Czech national registry of facioscapulohumeral muscular dystrophy

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The patient registries belong to the core activities which can help us in planning of the effective health care, assessing standards of diagnosis and care, and answer the questions concerning on epidemiologic data. The Czech national registry of facioscapulohumeral muscular dystrophy (FSHD) was established in 2013 under the supervision of Czech Neuromuscular Society. The technology, the data collection, storage and backup and their analyses are provided by the Institute of Biostatistics, Masaryk University, Brno.

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