231St ENMC international workshop: international standard for CIDP registry and biobank naarden, the Netherlands, 12-14 may 2017


• International CIDP registries were compared to assess infrastructure and collected clinical data, diagnostic data and biomaterials to enhance future research and improve standards of care in CIDP.• Consensus was reached on reached on inclusion criteria, a core set of variables at baseline, follow-up frequency, a minimal outcome set during follow-up, standardising the collection of biomaterials and ownership of data and biomaterials.• Task force was formed to harmonize the current registry protocols and develop INCbase as a central database.


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