REGISTRIES AND CARE OF NEUROMUSCULAR DISORDERS

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Improving participation is one of the most important goals of any intervention in care of children with neuromuscular disease. The child and adolescent scale of participation is one of the few tools available to evaluate participation in childhood. The aim of this study was to evaluate participation and its determinants in a sample of children with neuromuscular diseases. The CASP was filled by parents during a regular follow-up visit of their child (3 to 18 y) in two French reference centers for rehabilitation of neuromuscular disease.

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