Since 1996, Cure SMA has maintained a database of newly diagnosed information from persons with SMA reaching out to Cure SMA for information about SMA and other resources. All newly diagnosed information provided to Cure SMA is voluntary and includes information such as birthdate, date of diagnosis, type of SMA, and contact information. The Cure SMA databases is used to recruit patients for clinical studies, raise awareness about SMA to physicians, as well as establish a network for families and affected individuals.

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