Current guidelines for DMD care include early treatment with glucocorticoids, as well as cardiorespiratory, orthopaedic and rehabilitative intervention. Improvement in standards of care has altered the natural history of the condition, leading to increased survival of a population of patients with special needs, from the late teens to the third or even fourth decades. We present the observational data from a cohort of 87 adult patients with DMD who are registered with our neuromuscular services from January 2010 to March 2017.

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