Characteristics of myasthenia gravis and congenital myasthenic syndromes include muscle weakness and fatigue which can fluctuate week to week, day to day and typically within the same day. Clinical services provide disease monitoring and medical management but currently no objective assessments are used on a regular basis to monitor fluctuations in symptoms in the home setting. This study aims to develop a home based assessment to enable people with myasthenic syndromes to self-monitor fluctuations in symptoms between clinical appointments.

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