The ACTIVLIM questionnaire was developed to measure global activity performance of neuromuscular patients (NMPs). It also has the potential to assess real life improvement resulting from new coming therapies. For this purpose, long term follow-up data are mandatory. Such data are currently absent from the literature. The aim of the present study is to compare ACTIVLIM measures of NMPs from the Belgian neuromuscular disease registry (BNMDR) between years 2011 and 2015. Data from 1064 NMPs who completed the ACTIVLIM questionnaire in 2011 and 2015 were extracted from the BNMDR.

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