International care guidelines established for Duchenne Muscular Dystrophy aim to ensure comprehensive medical, rehabilitation, and psychosocial care. Interdisciplinary neuromuscular clinics are recommended as a coordinated care model to anticipate functional changes and manage associated conditions. The magnitude of education and active recommendations that families receive during interdisciplinary team appointments are not known. In this study a qualitative researcher recorded the appointments of 14 families with 15 children during 17 DMD interdisciplinary clinic visits.

Read More...

Leave a comment.

Your email address will not be published. Required fields are marked*

Andoird App
Loading...