Respiratory complications associated with paediatric neuromuscular disorders (NMD), including Duchenne muscular dystrophy (DMD) and spinal muscular atrophy (SMA) may be mitigated by therapies such as non-invasive ventilation (NIV) and lung volume recruitment (LVR). For patients and families, making these challenging respiratory treatment decisions can be difficult and impact quality of life. Providing a shared decision-making environment may be helpful to the process. This study aimed to identify patient and family needs and preferences for paediatric NMD respiratory care decisions.

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